@IHaveIIH Thank you for your hard work this year. Have a great Xmas and New Year @sinister416 @littlemissnonam @VDubsTDi @saxmanad @Rascalized... View tweet

@IHaveIIH At least we know people ARE paying attention to us by giving credibility to what we say about #IIH So thank you to the org who used it on... View tweet

@IHaveIIH @Aliviamom11 Good. A cold cloth on your eyes and forehead will help soothe the pain a bit. Avoid caffeine and salt and anything that`s... View tweet

@IHaveIIH @Aliviamom11 Concentrate on you and your daughter, rather than what your family thinks because it will only make you ill. Put your energy... View tweet

@IHaveIIH @busterknighty69 I had the partial too my tumour was at the top. They were going to take all the kidney but felt with my other health... View tweet

@IHaveIIH @busterknighty69 They also found a cyst on my right kidney which they`re keeping an eye on. I just feel so thankful to the tech who did my... View tweet

@IHaveIIH @busterknighty69 He`s obviously missing the point of what you`re doing. He could have chosen to be part of it but instead chose to... View tweet

@IHaveIIH @busterknighty69 He`s obviously missing the point of what you`re doing. He could have chosen to be part of it but instead chose to... View tweet

@IHaveIIH @helt291981 Bless you hug. It`s important to have good support and information. I wish I`d had both at the start, which is why I wanted to... View tweet

@IHaveIIH @busterknighty69 I`ve always been good with fluids because of my Neuro condition, but since my kidney surgery, it seems to have increased... View tweet

@IHaveIIH @Girocks1 Sorry for late reply only just been able to see it. Yes others do experience that, I myself do. Watch out for foods with salt or... View tweet

@IHaveIIH @busterknighty69 I`m 43. I went for an abdominal ultrasound, and they noticed my bladder was empty, even though I`d drunk the amount of... View tweet

@IHaveIIH I`m in bed armed with tissues cold lozenges & fluids. A tweet away when you need advice. Thank goodness for the iPhone! That`s why we tell... View tweet

@IHaveIIH @outofmytree It could also be the weather as the drop in pressure can cause a barometric migraine. We also are more likely to suffer from... View tweet

@IHaveIIH Our #VISION #FF @actionforblind @amdalliance @BritBlindSport @BlindBeautiful @RNIB @RNC_official @_LOOK_ @Vision_Charity @VISION2020UK... View tweet

@IHaveIIH @tweepwife Give them as much info as you can about where you are at now, and ask them about any help they can give you. If you have any... View tweet

@IHaveIIH @tweepwife Give them as much info as you can about where you are at now, and ask them about any help they can give you. If you have any... View tweet

@IHaveIIH @iangodfree77 Let me know if that helps. She needs to lay flat and drink caffeine and water. Pain relief should help but if it gets worse... View tweet

@IHaveIIH VISION #FF @actionforblind @amdalliance @BritBlindSport @BlindBeautiful @RNIB @RNC_official @_LOOK_ @Vision_Charity @VISION2020UK... View tweet

@IHaveIIH #FF  #IIH Awareness Month @UnderstandIH @IHResearchFound @IHRegistry @IH_Australia @IHKSecretPals @rarediseaseuk @eurordis @RareDiseases... View tweet

@IHaveIIH @iangodfree77 I`ll keep my fingers crossed for her. Let me know how she gets on. Make sure she rests, drinks plenty of fluids and caffeine... View tweet

@IHaveIIH VISION #CT @actionforblind @BritBlindSport @BlindBeautiful @_LOOK_ @NBCScharity @RNIB @VISION2020UK @Vision_Charity @VisionCharity_... View tweet

@IHaveIIH #CT #IIH Awareness Month @UnderstandIH @IHResearchFound @IHRegistry @IH_Australia @IHKSecretPals @rarediseaseuk @eurordis @RareDiseases... View tweet

@IHaveIIH #IIH Awareness Month is NOW! Make Your Bid To Support IHRF All proceeds go to Intracranial Hypertension Research Foundation to support IH... View tweet

@IHaveIIH #FF  #IIH Awareness Month @UnderstandIH @IHResearchFound @IHRegistry @IH_Australia @IHKSecretPals @rarediseaseuk @eurordis @RareDiseases... View tweet

@IHaveIIH VISION #FF @actionforblind @amdalliance @BritBlindSport @BlindBeautiful @RNIB @RNC_official @_LOOK_ @Vision_Charity @VISION2020UK... View tweet

@IHaveIIH #CT #IIH Awareness Month @UnderstandIH @IHResearchFound @IHRegistry @IH_Australia @IHKSecretPals @rarediseaseuk @eurordis @RareDiseases... View tweet

@IHaveIIH My account was hacked please delete direct messages saying things are being said about u with a link in. THEY are NOT from me! View tweet

@IHaveIIH @iangodfree77 She needs to see her Neuro especially because of her vision and blackouts. The quicker they deal with it the better the... View tweet

@IHaveIIH @iangodfree77 Make sure to take pain relief at the first sign of headache as it will be more effective. Use a cold cloth on ur eyes... View tweet

@IHaveIIH Stay flat caffeine helps and get ur doctor to come out tomorrow. He`ll either give u more effective pain relief or be able to get ur Neuro... View tweet

@IHaveIIH VISION #FF @actionforblind @amdalliance @BritBlindSport @BlindBeautiful @RNIB @RNC_official @_LOOK_ @Vision_Charity @VISION2020UK... View tweet

@IHaveIIH Awareness #CT @UnderstandIH @IHKSecretPals @IH_Australia @IHResearchFound @GBSSupport @rarediseaseuk @RDD2013 @eurordis @CheckOrphan... View tweet

@IHaveIIH Awareness #FF @IHResearchFound @IH_Australia @IHKSecretPals @UnderstandIH @curetheprocess @DareToHopeOrg @FasterCures @RareDiseases... View tweet

@IHaveIIH AWARENESS #FF @IH_Australia @IHKSecretPals @GlobalGenes @advocacyrss @curetheprocess @eurordis @RDD2013 @rarediseaseuk @GeneticAll_UK... View tweet

@IHaveIIH VISION #FF @actionforblind @amdalliance @BritBlindSport @BlindBeautiful @RNIB @RNC_official @_LOOK_ @Vision_Charity @VISION2020UK... View tweet

@IHaveIIH VISION #CT @actionforblind @BritBlindSport @BlindBeautiful @_LOOK_ @NBCScharity @RNIB @VISION2020UK @Vision_Charity @VisionCharity_... View tweet